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Invoking the principle of confidentiality in order
to avoid job discrimination is seriously considered by the Joint
NIH-DOE Working Group on Ethical, Legal, and Social Issues (ELSI)
of human genome research. Yet, more importantly, ELSI supports
"universal access to . . . basic health services" and
states that "information about past, present or future health
status, including genetic information, should not be used to deny
health care coverage or services to anyone." Rather than
relying simply on protection of privacy, the point here is that
genetic information, whether available or not available, should
not affect access to basic health care. Genetic Information
and Health Insurance (Washington, DC: National Institutes
of Health, National Center for Human Genome Research, Publication
No. 93-3686, May 10, 1993) 2.
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